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The Faces of Liver Disease

Sydney Sullivan

Sydney’s Story…

Diagnosed with Autoimmune Hepatitis
At age 12, Sydney Sullivan learned she had a serious liver disease that would ultimately lead to a liver transplant. That was the day she ate her last burger and fries and started doing CrossFit. A few years later, she won the World CrossFit Games and the title of the world’s fittest teen. But, her disease had progressed, and she knew it was time to find the right transplant center. What she didn’t know was that her brother Tommy would save her life.

Posted January 22, 2018

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Stories from real people like you

Find a story of hope from people who have lived with liver disease, who are caring for people with liver disease or are treating people with liver disease. Browse our library of stories or select from this menu to read about stories associated with a specific liver disease. If you’re so inclined, please share your story with our readers too!

Heather

Heather

Diagnosed with Acute Hepatic Porphyria (AHP)
Andrew

Andrew

Alagille Syndrome
Johnston

Jack & Gene J.

Alpha-1 Antitrypsin Deficiency
Julie D - Faces of Liver Disease

Julie D.

Altruistic Living Donor
Linda K. - Faces of Liver Disease

Linda K.

Alpha-1 Antitrypsin Deficiency
Silhouette Woman

Pam C.

Caregiver for Husband…
Robert F. - Faces of Liver Disease

Robert F.

Alpha-1 Antitrypsin Deficiency/ Nonalcoholic Steatohepatitis (NASH)
Brian

Brian

Cirrhosis
Lacey N.

Lacey N.

Budd-Chiari Syndrome and Ascites
faces of Liver Disease

Amanda P.

Autoimmune Hepatitis
Amy S. - Faces of Liver Disease

Amy S.

Autoimmune Hepatitis
Brenda Chapman

Brenda C.

Autoimmune Hepatitis/Primary Biliary Cholangitis
Cara

Cara

Autoimmune Hepatitis
Carley Vogel, ALF blogger and patient advocate

Carley V: Blog Introduction

Autoimmune Hepatitis
Christian

Christian

Autoimmune Hepatitis
Cliff

Cliff O.

Liver Transplant
Cory

Cory C.

Primary Sclerosing Cholangitis
Emma

Emma A.

Autoimmune Hepatitis
Gary E

Gary E.

Liver Transplant
Moreno

Griselda M.

Autoimmune Hepatitis
Heather K. - Faces of Liver Disease

Heather K.

Autoimmune Hepatitis
Holly Forrest

Holly F.

Primary Sclerosing Cholangitis and Autoimmune Hepatitis
Jackie C. - Faces of Liver Disease

Jackie C.

Autoimmune Hepatitis/Primary Biliary Cholangitis
Faces of Liver Disease

Jennifer F.

Autoimmune Hepatitis
Jessica G

Jessica G.

Autoimmune Hepatitis
Jim G

Jim G.

Autoimmune Hepatitis
Julie M. Faces of Liver Disease

Julie M.

Autoimmune Hepatitis
Lindsey-Z

Lindsey Z.

Autoimmune Hepatitis
Liver Mothers

Liver Mothers

Liver Disease
Mackenzie

Mackenzie’s Story

Autoimmune Hepatitis
Hoomes

Maggie H.

Autoimmune Hepatitis
Paysen M. - Faces of Liver Disease

Paysen M.

Autoimmune Hepatitis
Ryan-L

Ryan L.

Organ Donor
Sharnell

Sharnell J.

Autoimmune Hepatitis
Sharon-M

Sharon M.

Autoimmune Hepatitis
Sophie H. - Faces of Liver Disease

Sophie H.

Primary Sclerosing Cholangitis and Autoimmune Hepatitis
Susannah K

Susannah K.

Liver Transplant
Sydney Sullivan

Sydney’s Story

Autoimmune Hepatitis
Tammy

Tammy P.

Primary Sclerosing Cholangitis
Traci Paisley Ann

Traci B.

Autoimmune Hepatitis and Primary Biliary Cholangitis
Shelby

Shelby P.

Benign Liver Tumors
Stan

Stan I.

Hepatitis C
Lisa Craine

Lisa’s Story

Bile Duct Cancer (cholangiocarcinoma) Learn More about Bile Duct Cancer The word cholangiocarcinoma was not part of our vocabulary till
Faces of Liver Disease - Adriana G.

Adriana G.

Biliary Atresia
Aiden

Aiden

Biliary Atresia
Annistyn

Annistyn K.

Biliary Atresia
Anoura

Anoura A.

Biliary Atresia
Audrey Travis

Audrey’s Story

Biliary Atresia
Danielle

Danielle

Biliary Atresia
Domenic F

Domenic F.

Biliary Atresia
Dustin

Dustin Y.

Biliary Atresia
Elaina R - Faces of Liver Disease

Elaina R.

Biliary Atresia
Elise

Elise’s Story

Biliary Atresia
The Sellers Family

Ellen’s Story

Biliary Atresia
Gavin S

Gavin S.

Biliary Atresia
Hannah S

Hannah S.

Biliary Atresia
Jax

Jax S.

Biliary Atresia
Jeffrey D

Jeffrey D.

Biliary Atresia
John H - Faces of Liver Disease

John H.

Biliary Atresia
Josh D

Josh D.

Biliary Atresia
Julia N. - Faces of Liver Disease

Julia N.

Biliary Atresia
Cooper Hanks family

Kristen H.

Biliary Atresia
Lillian H. - Faces of Liver Disease

Lillian H.

Biliary Atresia
Luke

Luke M.

Biliary Atresia
Madelyn S. Faces of Liver Disease

Madelyn S.

Biliary Atresia
Matt R

Matt R.

Biliary Atresia
Melyee

Meiyee C.

Biliary Atresia
Millie T

Millie T.

Biliary Atresia
Molly

Molly

Biliary Atresia
Natalie

Natalie Williams

Biliary Atresia
Nick-W

Nick W.

Biliary Atresia
Noel R

Noel R.

Biliary Atresia
Penny L. - Faces of Liver Disease

Penelope L.

Biliary Atresia
Raphael Kellner

Raphael K.

Biliary Atresia
Sawyer C - Faces of Liver Disease

Sawyer C.

Biliary Atresia
Shantalea J.

Shantalea J.

Biliary Atresia
Tessa Faces of Liver Disease blue

Tessa’s Story

Biliary Atresia
Tran T

Tran T.

Biliary Atresia
Victoria M. Faces of Liver Disease

Victoria M.

Biliary Atresia
Will B. - Faces of Liver Disease

Will B.

Biliary Atresia
Xander

Xander

Biliary Atresia
Beth

Beth

Crigler-Najjar Syndrome
Silhouette Woman

Becky B.

Liver Transplant, NASH
Bob

Bob R.

Hepatitis C
Bradley

Bradley R.

Acute Liver Failure
Brenda Chapman

Brenda C.

Autoimmune Hepatitis/Primary Biliary Cholangitis
Brian

Brian

Cirrhosis
Carter

Carter

Liver Cancer
Charlie

Charlie R.

Liver Transplant
Christy

Christy G.

Cirrhosis
Cory

Cory C.

Primary Sclerosing Cholangitis
Dale

Dale M.

Primary Sclerosing Cholangitis
Dave B

Dave B.

Liver Transplant…
David R

David R.

Hepatitis C
David R. - Faces of Liver Disease

David R.

Non-Alcoholic Fatty Liver Disease/Cirrhosis
Georgina F. - Faces of Liver Disease

Georgina F.

Hepatitis C/Cirrhosis
Participants

Greg H.

Liver Cancer
Faces of Liver Disease

Jason D.

Alcohol-related Cirrhosis
Kevin C

Kevin C.

Alcohol-Related Liver Disease
Kim C. - Faces of Liver Disease

Kim C.

End Stage Liver Disease
Silhouette Woman

Pam C.

Caregiver for Husband…
Ryan-L

Ryan L.

Organ Donor
Silhouette Woman

Samantha W.

Caregiver for Husband…
Stan

Stan I.

Hepatitis C
US Army Vet

US Army Vet

Hepatitis C
Vallery-G

Valerie G.

Hepatitis C
Chris and Kaila

Kaila’s Story

Hemochromatosis
Angie

Angie M.

Caregiver for Brother…
Faces of Liver Disease

Charles D.

Hepatic Encephalopathy
Rost

Janet

Hepatic Encephalopathy Hepatitis C End Stage Liver Disease
Faces of Liver Disease

Jason D.

Alcohol-related Cirrhosis
Silhouette Man

Jeremiah B.

Caregiver for Wife…
Silhouette Woman

Joyce O.

Caregiver for Mother…
Scheidel

Karen S.

Primary Biliary Cholangitis
Lynette K

Lynette K.

Hepatic Encephalopathy
Silhouette Woman

Samantha W.

Caregiver for Husband…
Stan

Stan I.

Hepatitis C
Tom

Tom

Hepatic Encephalopathy Congenital Hepatic Fibrosis
Tracey

Tracey N.

Caregiver for Husband…
Faces of Liver Disease

Ranae Woods

Hepatitis A
Dao D

Dao D.

Hepatitis B
Bob

Bob R.

Hepatitis C
Brian

Brian A.

Hepatitis C
Carleen

Carleen M.

Hepatitis C
Carlette

Carlette M.

Hepatitis C
David R

David R.

Hepatitis C
Debbie J

Debbie J.

Hepatitis C
Debbie P

Debbie P.

Hepatitis C
Debra J

Debra J.

Hepatitis C
Georgina F. - Faces of Liver Disease

Georgina F.

Hepatitis C/Cirrhosis
Isabelle G

Isabelle G.

Hepatitis C
Jackie

Jackie V.

Hepatitis C
Rost

Janet

Hepatic Encephalopathy Hepatitis C End Stage Liver Disease
John D

John D.

Hepatitis C
Judy P

Judy P.

Hepatitis C
Keith G

Keith G.

Hepatitis C
Silhouette Man

Kendall M.

Hepatitis C
Lori G

Lori G.

Hepatitis C
Martha S

Martha S.

Liver Disease
Mary-L

Mary L.

Hepatitis C
Michael P

Michael P.

Hepatitis C
Michelle C

Michelle C.

Hepatitis C
Natasha D

Natasha D.

Hepatitis C
Paul-B

Paul B.

Hepatitis C
Peggy R. - Faces of Liver

Peggy R.

Hepatitis C/Liver Cancer
Peter-M

Peter M.

Hepatitis C
Robert-M

Robert M.

Hepatitis C
Silhouette Woman

Samantha W.

Caregiver for Husband…
Shelley R

Shelley R.

Hepatitis C
Stan

Stan I.

Hepatitis C
Steve W

Steve W.

Hepatitis C
Thomas C

Thomas C.

Hepatitis C
US Army Vet

US Army Vet

Hepatitis C
Vallery-G

Valerie G.

Hepatitis C
William

William Y.

Hepatitis C
Kim B

Kim B.

Intrahepatic Cholestasis of Pregnancy
Amber R - Faces of Liver Disease

Amber R.

Liver Cancer
Amy

Amy’s Story

Learn More about Liver Cancer Liver Cancer
Liver Life Walk

Art C.

Liver Cancer
Pitts

Barb’s Story

Learn More about Liver Cancer Liver Cancer
Carter

Carter

Liver Cancer
Dan and Kevin

Dan M.

Living Donor for brother with PSC and Bile Duct Cancer
Dave B

Dave B.

Liver Transplant…
Don's Story

Don’s Story

Liver Cancer
Frank M.

Frank M.

 Primary Sclerosing Cholangitis/Liver Cancer
Participants

Greg H.

Liver Cancer
Gretta G

Gretta G.

Liver Cancer
Jim

Jim

Primary Sclerosing Cholangitis
Lisa Craine

Lisa’s Story

Bile Duct Cancer (cholangiocarcinoma) Learn More about Bile Duct Cancer The word cholangiocarcinoma was not part of our vocabulary till
Lori

Lori

Liver Cancer
Menchie

Menchie’s Story

Learn More about Liver Cancer Liver Cancer
Peggy R. - Faces of Liver

Peggy R.

Hepatitis C/Liver Cancer
Stan

Stan I.

Hepatitis C
Don's Story

Don’s Story

Liver Cancer
Bobby Rydell

Bobby’s Story

Liver Transplantation
Organ Donation Awareness

Anne’s Story

Liver Transplantation
Paula's Story

Paula’s Story

Primary Biliary Cholangitis
Raphael Kellner

Raphael K.

Biliary Atresia
Pam S.

Pam S.

Liver Transplant
Frank M.

Frank M.

 Primary Sclerosing Cholangitis/Liver Cancer
Jay B.

Jay B.

Hepatorenal Syndrome – Type-1/Liver Transplant
Brian B.

Brian B.

Acute Liver Failure/Liver Transplant
Julie D - Faces of Liver Disease

Julie D.

Altruistic Living Donor
Penny L. - Faces of Liver Disease

Penelope L.

Biliary Atresia
John H - Faces of Liver Disease

John H.

Biliary Atresia
Georgina F. - Faces of Liver Disease

Georgina F.

Hepatitis C/Cirrhosis
Kim C. - Faces of Liver Disease

Kim C.

End Stage Liver Disease
Robert F. - Faces of Liver Disease

Robert F.

Alpha-1 Antitrypsin Deficiency/ Nonalcoholic Steatohepatitis (NASH)
Amanda W. - Faces of Liver Disease

Amanda W.

Primary Sclerosing Cholangitis
Amy C. - Faces of Liver Disease

Amy C.

Primary Biliary Cholangitis
Heather K. - Faces of Liver Disease

Heather K.

Autoimmune Hepatitis
Linda K. - Faces of Liver Disease

Linda K.

Alpha-1 Antitrypsin Deficiency
Camden U. - Faces of Liver Disease

Camden U.

Urea Cycle Disorder - CPSI
Kimberly

Kimberly M.

Non-alcoholic Steatohepatitis (NASH)
Lori

Lori M.

Primary Sclerosing Cholangitis, Liver Transplant Recipient
Dustin

Dustin Y.

Biliary Atresia
Holly Forrest

Holly F.

Primary Sclerosing Cholangitis and Autoimmune Hepatitis
Aiden

Aiden

Biliary Atresia
Kimberly

Kimberly

Non-Alcoholic Steatohepatitis (NASH)
Tom

Tom

Hepatic Encephalopathy Congenital Hepatic Fibrosis
Rost

Janet

Hepatic Encephalopathy Hepatitis C End Stage Liver Disease
Participants

Greg H.

Liver Cancer
Faces of Liver Disease

Jennifer F.

Autoimmune Hepatitis
Faces of Liver Disease

Matt L.

Liver Transplant
Natalie

Natalie Williams

Biliary Atresia
Regina

Regina S.

Primary Biliary Cholangitis
Johnston

Jack & Gene J.

Alpha-1 Antitrypsin Deficiency
Stringfellow

Leonard S.

Over-the-Counter Medication-induced Liver Failure
Melyee

Meiyee C.

Biliary Atresia
Dunning

Chad D.

Primary Sclerosing Cholangitis
Dan and Kevin

Dan M.

Living Donor for brother with PSC and Bile Duct Cancer
Elise

Elise’s Story

Biliary Atresia
Jessica

Jess S.

Primary Biliary Cholangitis
Marlene

Marlene K.

Liver Transplant
Andrea

Andrea B.

Liver Transplant
Dale

Dale M.

Primary Sclerosing Cholangitis
Cory

Cory C.

Primary Sclerosing Cholangitis
Tammy

Tammy P.

Primary Sclerosing Cholangitis
Mindy

Mindy C.

Primary Sclerosing Cholangitis
Ron

Ron M.

Caregiver for Wife…
Xander

Xander

Biliary Atresia
Tran T

Tran T.

Biliary Atresia
Tigerlilly

Tigerlily W.

Biliary Atresia
Terri W

Terri W.

Tyrosinemia
Spanky

Spanky C.

Liver Transplant
Shari S

Shari S.

Liver Transplant
Sandy

Sandy

Primary Biliary Cholangitis
Ryan-L

Ryan L.

Organ Donor
Robert-M

Robert M.

Hepatitis C
Phillip S

Philip S.

Non-Alcoholic Fatty Liver Disease, NASH
Isaac N

Isaac N.

Liver Failure…
David R

David R.

Hepatitis C
Nick-W

Nick W.

Biliary Atresia
Bryan D

Bryan D.

Primary Sclerosing Cholangitis
Millie T

Millie T.

Biliary Atresia
Matt R

Matt R.

Biliary Atresia
Mallory S

Mallory S.

Liver Transplant
Josh D

Josh D.

Biliary Atresia
Jordan J

Jordan J.

Primary Sclerosing Cholangitis
Joey H

Joey H.

Liver Failure
Jim

Jim

Primary Sclerosing Cholangitis
David

David B.

Organ Donation
Hannah S

Hannah S.

Biliary Atresia
Jax

Jax S.

Biliary Atresia
Susannah K

Susannah K.

Liver Transplant
Yennai S

Yennai S.

Liver Disease
Michael K

Michael Kerr

Liver Transplant
Gary E

Gary E.

Liver Transplant
Natasha D

Natasha D.

Hepatitis C
Dave B

Dave B.

Liver Transplant…
Corrine

Corrine

Liver Transplant
Cliff

Cliff O.

Liver Transplant
Charlie

Charlie R.

Liver Transplant
Carter

Carter

Liver Cancer
Bob

Bob R.

Hepatitis C
Bel

Bel K.

Liver Transplant
Silhouette Woman

Becky B.

Liver Transplant, NASH
Aiden

Aiden M.

Liver Transplant
Aidan

Aidan D.

Liver Transplant
Liver Mothers

Liver Mothers

Liver Disease
Sophia

Sophia W.

Liver Transplant…
Carol

Carol S.

Liver Transplant, NASH
Allison C

Allison C.

Primary Sclerosing Cholangitis
Jeffrey D

Jeffrey D.

Biliary Atresia
Aidan

Aidan D.

Liver Transplant
Carter

Carter

Liver Cancer
Gavin S

Gavin S.

Biliary Atresia
Hannah S

Hannah S.

Biliary Atresia
Penny L. - Faces of Liver Disease

Penelope L.

Biliary Atresia
Tran T

Tran T.

Biliary Atresia
Ben

Ben’s Story

Nonalcoholic Fatty Liver Disease
Billy

Billy C.

Non-Alcoholic Fatty Liver Disease
Corrine

Corrine

Liver Transplant
David R. - Faces of Liver Disease

David R.

Non-Alcoholic Fatty Liver Disease/Cirrhosis
Gretta G

Gretta G.

Liver Cancer
Nick G

Nick G.

Non-Alcoholic Fatty Liver Disease

Tom’s NAFLD/NASH Story

This video was created by the American Liver Foundation, which is solely responsible for its content. It was made possible
Jessica

Jessica’s Story

Primary Biliary Cholangitis
Paula's Story

Paula’s Story

Primary Biliary Cholangitis
Amy C. - Faces of Liver Disease

Amy C.

Primary Biliary Cholangitis
Jackie C. - Faces of Liver Disease

Jackie C.

Autoimmune Hepatitis/Primary Biliary Cholangitis
Richard S. - Faces of Liver Disease

Richard S.

Hepatic Encephalopathy and End Stage Liver Disease
Amy H - Faces of Liver Disease

Amy H.

Primary Biliary Cholangitis
Traci Paisley Ann

Traci B.

Autoimmune Hepatitis and Primary Biliary Cholangitis
Scheidel

Karen S.

Primary Biliary Cholangitis
Natalie

Natalie Williams

Biliary Atresia
Regina

Regina S.

Primary Biliary Cholangitis
Allison C

Allison C.

Primary Sclerosing Cholangitis
Amanda W. - Faces of Liver Disease

Amanda W.

Primary Sclerosing Cholangitis
Bryan D

Bryan D.

Primary Sclerosing Cholangitis
Dunning

Chad D.

Primary Sclerosing Cholangitis
Cory

Cory C.

Primary Sclerosing Cholangitis
Dale

Dale M.

Primary Sclerosing Cholangitis
David

David’s Story

Primary Sclerosing Cholangitis
Frank M.

Frank M.

 Primary Sclerosing Cholangitis/Liver Cancer
Holly Forrest

Holly F.

Primary Sclerosing Cholangitis and Autoimmune Hepatitis
Jim

Jim

Primary Sclerosing Cholangitis
Jordan J

Jordan J.

Primary Sclerosing Cholangitis
Michael K

Michael Kerr

Liver Transplant
Mindy

Mindy C.

Primary Sclerosing Cholangitis
Sophie H. - Faces of Liver Disease

Sophie H.

Primary Sclerosing Cholangitis and Autoimmune Hepatitis
Tammy

Tammy P.

Primary Sclerosing Cholangitis
Yennai S

Yennai S.

Liver Disease
Evan P. Faces of Liver Disease

Evan P.

Progressive Familial Intrahepatic Cholestasis (PFIC)
Isaac L.

Isaac L.

Benign Recurrent Intrahepatic Cholestasis (BRIC)
Kennedie K. Faces of Liver Disease

Kennedie K.

Progressive Familial Intrahepatic Cholestasis (PFIC)
Bonczyk Family

PFIC. Rare Disease. Real Lives.

Progressive Familial Intrahepatic Cholangitis (PFIC)
Casey Pender

Casey’s Story

Wilson Disease
Davisson

Erin’s Story

Wilson Disease
Mallory S

Mallory S.

Liver Transplant
Megan

Megan D.

Wilson Disease
Haley and Michaela

Michaela L. & Haley W.

Wilson Disease
Shari S

Shari S.

Liver Transplant

Last Updated on April 15, 2022

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