A Life Changed By Giving
Zachary Rue, my patient match, was diagnosed at birth with a rare form of pediatric liver disease known as Biliary Atresia. Zac is now 10 years old. He and his mother, Heather, continue to fight a tireless battle against his condition. I continue to run marathons with the American Liver Foundation to support Zac and all of those touched by liver disease.
Programs, events, advances in research, resources in your area, support groups and more.
Ellen’s Story
Biliary Atresia ...
Celebrate Women’s History Month with a Pediatric Liver Superhero
Meet Dr. Udeme Ekong, Associate Professor of Pediatrics and Surgery at Georgetown University School of Medicine and Attending Physician, Pediatric Hepatology and Transplant Hepatology at Medstar Georgetown Transplant Institute.Dr. Ekong received her medical degree in ...
Tessa’s Story
Biliary Atresia ...
Raphael K.
Biliary Atresia ...
February 28th is Rare Disease Day!
Have you ever wondered what makes a disease a rare disease? Rare diseases are diseases which affect a small number of people compared to the general population. In Europe, a disease is considered rare when ...
Rare Liver Disease Month Focus: Rare Forms of Liver Cancer
Liver cancer is cancer that occurs in the liver. Primary liver cancer is cancer that begins in the cells of the liver. Secondary liver cancer develops when cancer cells from another part of the body ...
Pediatric Liver Disease and COVID-19
January 27, 2021 we hosted a panel of experts who answered questions about how COVID-19 is impacting children with liver disease and what you need to know. Participants had the opportunity to has panelists questions ...
Liver Week 2020
Did you know there are over 100 types of liver diseases? As the American Liver Foundation, our mission is to promote education, advocacy, support services and research for the prevention, treatment and cure of liver ...
Pediatric Fatty Liver Disease
What is Pediatric Non-Alcoholic Fatty Liver Disease (NAFLD)? NAFLD is a spectrum of diseases that all begin with excess fat deposition in the liver. As the disease becomes more severe, inflammation or irritation of the ...
Hepatitis C in Children
Hepatitis C infection (HCV) is a chronic viral infection of the liver that affects upwards of 1-2 percent of adults. Fortunately, in children and adolescents, hepatitis C is less common, but it remains a significant ...
Carley V: Blog Introduction
Autoimmune Hepatitis ...
Liver Disease Statistics
According to the 2015 National Survey on Drug Use and Health (NSDUH), 86.4 percent of people ages 18 or older reported that they drank alcohol at some point in their lifetime. 70.1 percent reported that ...
Q&A: Understanding Pediatric Liver Disease
Approximately 15,000 hospitalizations occur each year for pediatric liver disease in the United States. During the first month after birth, the incidence of neonatal liver disease is as many as one in 2,500. The different ...
From Perfect to Miraculous: Biliary Atresia Makes This Baby a Mentor
She’s only a little over three years old. But Deanna Lynn Anderson may be the world’s youngest mentor, according to her mom, Heidi. This little one was diagnosed at three months old with Biliary Atresia ...
Biliary Atresia: The Liver Disease that Affects Children
Biliary atresia is a disease of the bile ducts that affects only infants. It is rare, affecting about one out of every 18,000 infants. The disease is more common in females, premature babies, and children ...
Liver Transplant Q&A
Approximately 6,000 liver transplants are performed in the U.S. each year. But more than 17,000 Americans are still waiting for donated livers to become available for transplants. Recipients and those awaiting transplants have a myriad ...
A Life Changed By Giving
I don’t have a liver condition nor does anyone in my family, but I know the pain and worry a family can feel if they have a loved one with liver disease. My relationship with ...
Last Updated on April 20, 2020
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